American Neurogastroenterology and Motility Society
The Mission and Goals of the ANMS
The American Neurogastroenterology and Motility Society is an organization that was established in 1980 and is dedicated to the study of neurogastroenterology and gastrointestinal motility and functional GI disorders.
Mission of the ANMS To be the multidisciplinary society leading the field of neurogastroenterology by fostering excellence in research, education, training, and patient care.
Neurogastroenterology encompasses the study of brain, gut, and their interactions with relevance to the understanding and management of GI motility and functional GI disorders. ANMS Website
National Digestive Diseases Information Clearinghouse (NDDIC) A service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the National Institutes of Health (NIH). NDDIC Web Site
Our mission is to bring pediatric feeding struggles to the forefront, so infants and children are identified early, families’ voices are heard, and medical professionals are equipped to deliver collaborative care. Feeding Matters Web Site
The National Organization for Rare Disorders The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
View the NORD statement on the FDA Safety and Innovation Act, which is a monumental step toward the development of safe and effective treatments for millions of Americans with rare diseases. PDF of full Article.
International Foundation for Gastrointestinal Disorders
IFFGD is a Public Charity designated under the U.S. IRS code 501(c)(3). We are a registered nonprofit education and research organization. Our mission is to inform, assist, and support people affected by gastrointestinal (GI) disorders. Founded in 1991 by Nancy Norton and William Norton, IFFGD works with patients (both adults and children), families, physicians, practitioners, investigators, employers, regulators, and others to broaden understanding about gastrointestinal disorders and support or encourage research.
MitoAction is a nonprofit organization founded by patients, parents, and Boston hospital healthcare leaders who had a vision of improving quality of life for children and adults with mitochondrial disease. The organization began as an idea in 2005, and has evolved from a small New England support group to a dynamic, active service organization helping thousands of patients and families. Despite the growth of the organization, the mission remains the same: to make a measurable impact in the lives of those who are affected by mitochondrial disease.
MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
United Mitochondrial Disease Foundation UMDF strives to promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
Association of Gastrointestinal Motility Disorders The Association of Gastrointestinal Motility Disorders, Inc. (AGMD), is one of the oldest non-profit organizations in existence with a focus on digestive motility diseases and disorders. The organization is most unique in that it is an international organization, which brings together patients, family members, physicians, nurses, basic science and clinical researchers, pharmaceutical and diagnostic professionals, home health care workers, dietitians, biotech industrialists, other organizations, and those in the community interested in digestive motility diseases and disorders through a variety of resources and programs. It is an organization, which focuses on education, the dissemination of information, advocacy, outreach, research, and support.
American Headache Society
The mission of the American Headache Society is to improve the care and lives of people living with headache disorders. The American Headache Society (AHS) is a professional society of health care providers dedicated to the study and treatment of headache and face pain. The Society’s objective is to promote the exchange of information and ideas concerning the causes and treatments of headache and related painful disorders. Educating physicians, health professionals, and the public and encouraging scientific research are the primary functions of our Society. AHS activities include an Annual Scientific Meeting, a comprehensive headache symposium, regional symposia for neurologists and family practice physicians, publication of the journal Headache and sponsorship of the American Migraine Foundation.
“The mission of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition is to advance understanding of normal development, physiology and pathophysiology of diseases of the gastrointestinal tract and liver in children, improve quality of care by fostering the dissemination of this knowledge through scientific meetings, professional and public education, and policy development, and serve as an effective voice for members and the profession.”
The membership of NASPGHAN consists of more than 1800 pediatric gastroenterologists, predominantly in 46 states, the District of Columbia, Puerto Rico, Mexico, and 8 provinces in Canada.
NASPGHAN strives to improve the care of infants, children and adolescents with digestive disorders by promoting advances in clinical care, research, and education. Pediatric gastroenterologists specialize in the care of children with chronic abdominal pain, diarrhea, constipation, vomiting, bleeding from the GI tract, inflammatory bowel disease, liver diseases, diseases of the pancreas, poor weight gain, and nutritional problems. Pediatric gastroenterologists specialize in gastroesophageal reflux (GER), peptic ulcers, H. pylori, celiac disease, Crohn’s disease, ulcerative colitis, Hirschsprung’s disease, cyclic vomiting, polyps, gallstones, hepatitis, biliary atresia, jaundice, pancreatitis, lactose malabsorption, failure to thrive, and other common and rare disorders. Most pediatric gastroenterologists perform endoscopy, colonoscopy, esophageal pH probe studies, esophageal and rectal manometry, and liver biopsies.
The Assistance Fund
The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. We currently manage more than 40 funds—each of which covers the FDA-approved medications that treat a specific disease. Since our founding in 2009, The Assistance Fund has helped more than 43,000 adults and children access the medicines they need to stay healthy or manage a chronic condition.